Archive for July, 2009

Jul 20 2009

Loss of our premmie babies 8 years on

Published by Elizabeth under Premature Baby

Tiana arriving on a magical unicorn.. I do believe that our angels helped to create a miracle for us. Thanks to Argnesh for this pic of Tiana and our angels. Its priceless. See more of her work here  and also here

another year passes this week

Its 8 years since my girls lost their battle with prematurity and became angels…

… I still feel like it was only last week, the excitement of knowing we were having twins, then “everything happened”

… I still will “never” get over their loss

… I still often look into the back of the seat and think there should be 3 little girls laughing and giggling

… I still cant go past the hospital where I had to leave empty handed… I will never forget that drive out of the carpark, it was the hardest thing in my life.  I wanted to run all the way back inside and get them

… I often stammer a little when a stranger asks “oh, how many children do you have?” do I tell them I have 3? and fear their reaction or lack of, if I tell them that only one lives at home as 2 have passed away? or do I not tell them and feel I have done an injustice to my girls?

… I still feel the softness of my girls and can smell their scent when I close my eyes

… I still cry, and sometimes really sob when I hear the song “fly” by Celine Dion.   

… I still remember that first mothers day… with a heavy heart and empty arms. The pain all over again. Read a bit more about that here

… I still feel the loss so terribly

… I still visit the cemetery every week and pop flowers in their graves and clean their plaque, and wonder  “what if….”

… I still get angry at ladies in the supermarket who yell or smack their kids for just “being kids”… (If only my girls were here)

… I still cry when listening to the news… at the abandonment of babies, and the neglect and the emotional and physical trauma many kids go through

… I still feel very close to my girls and always use their names when talking about our family. They ARE part of our family.

… I still have a photo of them up at home, and no longer feel I have to make other people feel “comfortable”

… I still talk about them and answer questions as they arise by our 6 yr old daughter.  She has grown up always knowing, and knows she has 2 gorgeous special angel sisters watching over her

… I still feel angry about some of the management at the time

… I still feel saddened by how some friends “left me alone” feeling I needed time.  and how one friend took 6 years to talk to me, see me and talk about it as “she” was uncomfortable

… I still remember being so so scared… more scared than anything in my whole life

… I still miss a heartbeat and hold my breathe when I hear a friend having dramas in pregnancy

… I still wish, I REALLY wish ….things were different

.. I still long for and wish my girls were here with me

… I still and will always miss them and love them, forever

 

 

 

 

Warmly Elizabeth xx
mum to 3 beautiful prem girls

“some can only dream of angels, we created 2, and they sent us an earthly miracle”

 soon…  one day… will tell the whole story….

 

 remember July 31st is the NATIONAL PREMMIE DAY we are giving a % of sales to

 

and also National Premmie Foundation

  please support your local group or www.prembaby.org.au

19 responses so far

Jul 18 2009

Bianca and Loddon Mallee Kids

Published by Elizabeth under Premature Baby

Jordan

  Bianca’s story   

 

My journey on this road to discovery, began early in 2001, when I found out that I was pregnant with my first child!  Like all expectant parents we were very excited.  I did all the right things, no soft cheese, no caffeine, no deli meats, no, no, no!

Everything appeared to be going fine, but on the 1st of December at 6:55am, I received the most precious gift, albeit a little early!  Jordan Nicholas entered the world just under 7 weeks early, weighing 4lb 15oz (2230g)!  Fortunately, only a week or two prior to Jordan’s birth a new mother came to speak at our ante natal class, who had a baby born at 32 weeks gestation as well, so I was able to take strength from her story.  One of the things that rang true from her story to mine, was the day I left hospital without my baby!  She had said that the hardest thing that she experienced was leaving the hospital without her baby.  Right up until I left the hospital I was adamant that it was a good thing that the baby was staying behind, the hospital could provide the right care for him and it would give me time, in the ensuing weeks to properly prepare to bring a baby home!  Well, I did not think that you could feel so much pain and trauma, in removing yourself from such a small little baby, but I cried and cried!  I left my baby and my heart in that special care nursery!

After 3 weeks of expressing and keeping a constant vigil by my babies bedside from 6:30am to 6:30 pm (I may as well have been paid staff!), we were finally lucky enough to bring our baby home!  It was so exciting, daunting and mind blowingly amazing, it felt like Christmas morning everyday!

As time went on, my baby boy grew, he had a few small hiccups along the way, a couple of operations for ingrainal hernia’s, but was strong and determined.  As soon as he could roll, he was off.

Two months after my baby’s first birthday we found out that I was pregnant with our second child.  For some reason I knew that this time I would go early, but expected it to only be a month early!  Unfortunately at 25 weeks gestation I was in labour and sent to Melbourne.  I was optimistic, but did cry as I told my Husband on the phone what was going to happen.  I remained as calm as possible and told the midwives on the way out of the hospital that I would be back at 28 weeks and then 32 weeks and all would be well.  Fortunately or unfortunately I did make it past 25 weeks, but not past 28!  On Saturday the 26th of July 2003, I again was in labour, my waters broke and a transfer was not an option.  My second baby boy was born breach by natural delivery on the Theatre table at 3:35pm!  He weighed 1120g (2lb 11oz), had an Apgar of 1 at 5 mins, which increased to 4 at 10 minutes!  He was one very sick little boy, but again, I was so proud, I thought that my heart would jump out of my chest!  The only times that I saw him on that day were, as they pulled one of his legs from me and then passed him to the waiting paediatric team, when they wheeled me to the Special Care Unit, where all I saw was medical people standing around a flat bed with lights.  My midwife, Rosie, gave me two photos that they had taken of my baby boy, even black and blue from the waist down I thought he was the most beautiful baby in the world!  I saw him for the final time, that night at around 9:30pm, where I was able to look at him and touch his precious little hand, through a perspex womb, just before he was placed into the care of the amazing NETS team who would deliver him safely to Melbourne.  As I was staring at him, in his new little home, we named him Samuel Thomas! 

The hospital stays were not the way that I had expected to bring my babies into the World, but they have taught me so much about my beautiful boys, myself, and the strength that we all carry within us!

 

When we finally returned home for good, I was fortunate enough to have been provided a fantastic Maternal and Child Health nurse who guided us through the joys of being a mother to prem babies, she also suggested that I attend a new playgroup especially for prem babies that was starting up soon, she assured me that I would love the woman who was starting the group up!  How right she was, the first time that I attended the premmie playgroup, I felt comfortable to be around other families who understood the sadness and happiness of the smallest milestones that many families, with full term babies often take for granted, like moving from a humidicrib to at ‘big bed’, graduating from gavage feeds to full bottle or breast feeds, and rooming in just before you get to take your baby home!!!

As time moved on, as it does, I become friends with Amanda, who set the group up and offered to help out in any way I could.  A stronger, more determined woman, you would be hard pressed to find, she became my mentor and dear friend, as we worked together to build Loddon Mallee Kids.  I am so lucky to have been able to work with and learn from one of life’s gems!

 

Today Loddon Mallee Kids, makes weekly visits to the Special Care Nurseries at  Bendigo hospitals’, has a weekly playgroup and is a founding member of the National Premmie Foundation.

 

 For more information please contact; 1300 prembaby or follow the links from www.prembaby.org.au

Loddon Mallee Kids is a not for profit parent support charity for people who have premature or sick children.  LMK runs weekly playgroup sessions for parents to chat with others who have had premature or sick children in hospital, to ensure that support for these families continues long after the children have ‘graduated’ from hospital.  LMK also does weekly hospital visits offering the opportunity for parents to speak with others who have been through the premature journey.  Parent gift packs are given to all families who have children in the Special Care Baby Units at Bendigo Health and Saint John of God hospitals, providing valuable information for parents who struggle to come to terms with the journey that they embark on.  LMK is a founding member of the National Premmie Foundation.

 

Bianca Rinaldi
President 
Loddon Mallee Kids
bianca@loddonmalleekids.org.au
1300 PREMBABY
1300 773 622

10 % of all sales from the premmie baby catagory at www.LaToriana.com.au will go directly to Loddon Mallee Kids and also  National Premmie Foundation til end of July.

 

Thanks Bianca for sharing.  I can personally vouch for the amazing work Amanda and Bianca have done with Loddon Malle Kids, and I feel extreemly lucky to be able to support and volunteer to help an amazing group.  Please jump onto both the above websites in support.

 

Warmly

Elizabeth xx

 

 Have you seen us on facebook? why not follow us!

La Toriana’s Profile
La Toriana's Facebook profile          

At La Toriana we have a passion for kids fashion.

Our labels include, Alimrose, annieB, Lambykins, Fairy Floss Creations, Eternal Creation, Vanchi, TikiBoo Kids, Little Pearls for Little Girls, Tea Princess, Three Little trees, Tummbear, babyjo bamboo baby wear, nest organics, early birds premature baby clothes, teeny weeny premmie baby wear, Oopsidaisi, boxy design, anamalz, Briit design, Bump buddy, cheeky little soles, Sounds for silence, Deshabille, eco peko, fINNIGAN fINN, gertie and me, Hey baby, huggalugs, i candy, lazybones, locolili, miniwhisk, mon tresor, nana huchy, nanny pickle, OOBI baby, penny scallan, Tabitha Emma, Tippie Toes, Princess ratbag, Alannah Rose stationary, Vintage Kid, Wild Things of Noosa and so many more!

We have the best online collection of premmie baby clothing, premature baby gifts and keepsakes too.  We showcase great Australian and New Zealand designers as well as neonatal and NICU appropiate baby clothing as well as organic premmie clothes and accessories.  Checkout our vast range of premmie wear and newborn baby items in our secure online baby boutique.  If you are looking for a baby that has been born prematurely, then you ahve come to the right online store.  La Toriana specialise in providing great quality, stylish and affordable designer leabel products for low weight babies and babies born early.

 

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Jul 16 2009

Amanda’s premmie baby story

Published by Elizabeth under Premature Baby

Charlie and Mandii’s story
 

Charlie was born at 27+6 wks by emergency caesarean. After having a week off work with high blood pressure, and his growth tapering off with every subsequent ultrasound, when I felt really unwell at 27 weeks I decided to go to the hospital to get checked out (even though we had an appointment the very next day.) Half expecting them to turn me away and tell me I was fine, they diagnosed severe pre-eclampsia and so the struggle began to keep Charlie inside for as long as possible.

We lasted 6 days, as I developed HELLP syndrome and it just became too dangerous a situation for both of us. Charlie was taken from me under general anaesthetic, as my platelet count dropped to unsafe levels. I didn’t get to see him until about 17hrs after his birth until I was well enough to be taken down in the bed, still on oxygen. He was the most beautiful thing I had ever seen. The whole 618grams of him. From that moment I was hooked. He was different to what I imagined. He was IUGR (growth-restricted) and his head was about the right size (22 cm) but his body was very tiny, about the size of what I imagine a 24 weeker would be. He looked starved, and I suppose its because he was. The first 4 or 5 days are a blur as I was very unwell and couldn’t visit him very often, which is just as well because it kept me ignorant of just how serious it was.

He was very sick from the very start, requiring a whole host of things in his first week including blood and platelet transfusions. He was getting antibiotics for an infection and his whole body puffed up due to all the fluid that his little veins couldn’t retain. He had a PDA and blood sugar issues. And of course, he was ventilated.

Things progressively got worse with the Doctors describing his condition as very sick, very ill, with a stricken look on their face. Ignorant as I was, I thought all premmie parents were spoken to in this way. His 2nd week brought more antibiotics to try and hold off the infection, and 2 more platelet transfusions. His fluids were restricted and he also received another blood transfusion. They could not isolate the infection and removed his central line in case it was breeding in there. So with his feeds restricted and no central line delivering nutrition he wasn’t really growing. He was too unstable to even be weighed.

This is when the damage to his skin started to become obvious. He was red raw under his neck, his bottom, in the creases of his arms. All his skin had started to dry up and peel off in big layers. A lot of the staff had never seen anything like it. Charlie became a bit of an “oh my God”. His platelets also plummeted again on Day 20, and he started to get a puffy belly and was not tolerating his feeds. The ugly possibility of NEC raised its head in my mind, but luckily I was wrong.

And then again, more Xrays as his stomach swelled again. And more antibiotics. And then day 22 brought another blood transfusion, and his feeds were stopped again. It felt like we were going nowhere. But then, things started to look a little brighter. With all his skin coming off, his infection started clearing and he started to tolerate unfortified feeds. We had our first cuddle on Day 25, but by day 27 he needed another platelet transfusion. I felt as if he must have caught something from me. The doctors assured me it was not the case.

We felt lost and desperate, like he was never going to improve. By the end of the 4th week, we were told about Chronic Lung Disease, he still had bad oedema, his weight kept dropping, this time down to 808g and I felt so sad. I remember going in on the train each morning, and sometimes I would be planning his funeral in my mind.

But then, as things sometimes do, it all started to get a bit better. By 5 weeks of age, he was finally gaining some weight and was 886g! His platelets started to increase, he had his last blood transfusion and he started to tolerate fortified milk again. It took him over 6 weeks to reach 1kg, but we were so proud of him when he did, and all of a sudden, the doctors seemed to sound more positive. And his next cardiac echo showed his PDA was getting smaller.

His weight kept gradually increasing, and he had the odd dose of antibiotics for suspected infections. Over the next month, the battle to try and get off the ventilator waged, but he was eventually re-intubated with a larger tube because he outgrew his old one. At this point we felt crushed because all his settings increased again, and I developed a cold and missed my first ever Mother’s day with him. It seemed like every time we called to check on him, he had been bagged. He earned the nickname of ˜bell-ringer’ from some of the nurses, and his blood-gases seemed to be worse. I thought he was never coming off the ventilator. Every day at lunch, I was haunted by the pictures in the hall of old babies on the ventilator still. I thought after all of this, he still wasn’t coming home. He was going to die on the thing. I was miserable. It seemed everyone else was off in Special Care trying to breastfeed their babies, and here we were still in the isolette, still getting bagged all the time.

But on day 75, Charlie decided he had enough too, and self-extubated. He lasted on normal C-PAP for 7 hrs before they gave him some ventilation as side breaths. He did so well though, he was on normal C-PAP after a week. Finally I could hear my little boy make noises! It was magical. He finally made 2kg by day 83, and all of a sudden time seemed to speed up. Before I knew it we were in Room 2, off C-PAP, having nuzzles, in an open cot, wearing clothes and getting ready for Special Care. After 102 days in Intensive Care, we were moving! I kept waiting for the bubble to burst, and some of the nurses told me to not get too excited just yet, that you never knew what could happen with ˜these chronic babies’. But he just kept going, and going and going and after 2 weeks in Special Care we were going home. No oxygen, no feeding tubes, nothing. It all seemed to happen so fast. We were so proud to take him home!

Charlie is now 28 months old, and 10 kg.  I sometimes can’t believe he is the same boy and yet he bears all the scars that prove it. He is really remarkable. In hindsight now, we know how very sick he was. Quite a few nurses and doctors have since stated or implied that they didn’t think he was going to survive. That one day they would come to work and his isolette would be empty. And that explains why whenever other new mom’s and dad’s came in the doctors just sounded so positive with them. I could never understand why they didn’t sound like that with us. Now I do. I can’t believe he survived his infection. I can’t believe he came off the ventilator. I can’t believe he is still here. We are so lucky, and I remind myself everyday!

Mandii (mummy to Charlie and more recently to Elizabeth)

……………………………………………………………………………………………………………

Thank you so much for sharing your amazing story.  I am so in awe of the strength and resolve you have.  What an amazing and inspiring journey you have been through… and what a special, gorgeous little Charlie.

 

Warmly

Elizabeth xx

 

 Have you seen us on facebook? why not follow us!

La Toriana’s Profile
La Toriana's Facebook profile          

At La Toriana we have a passion for kids fashion.

Our labels include, Alimrose, annieB, Lambykins, Fairy Floss Creations, Eternal Creation, Vanchi, TikiBoo Kids, Little Pearls for Little Girls, Tea Princess, Three Little trees, Tummbear, babyjo bamboo baby wear, nest organics, early birds premature baby clothes, teeny weeny premmie baby wear, Oopsidaisi, boxy design, anamalz, Briit design, Bump buddy, cheeky little soles, Sounds for silence, Deshabille, eco peko, fINNIGAN fINN, gertie and me, Hey baby, huggalugs, i candy, lazybones, locolili, miniwhisk, mon tresor, nana huchy, nanny pickle, OOBI baby, penny scallan, Tabitha Emma, Tippie Toes, Princess ratbag, YmamaY, Dolly Up, Alannah Rose stationary, Vintage Kid, Wild Things of Noosa and so many more!

We have the best online collection of premmie baby clothing, premature baby gifts and keepsakes too.  We showcase great Australian and New Zealand designers as well as neonatal and NICU appropiate baby clothing as well as organic premmie clothes and accessories.  Checkout our vast range of premmie wear and newborn baby items in our secure online baby boutique.  If you are looking for a baby that has been born prematurely, then you ahve come to the right online store.  La Toriana specialise in providing great quality, stylish and affordable designer leabel products for low weight babies and babies born early.

2 responses so far

Jul 14 2009

Enchanted realms of chilhood dreams ~ Give them wings

Beauty and Magic is all around us. We invite you back into the forgotten enchantment of the Spirit World, where Imps, Fairies, and Pixies dance with butterflies, and Angels and Fairy-Godmothers look after the young,and our Totem Animals guide us on our path.

La Torina is proud to showcase this amazing talent.  Your everday snaps of your children can be made into an amazing keepsake and wall art.  Here lets take you to the first step.

A beutiful gift for a premmie baby or newborn, or one of all your kids together.  Prices below include up to 3 children/pet in your picture.

Argnesh Rose will turn your favorite snapshot into a Fantasy or Totem portrait and reveal the magic of you, your loved ones, or turn you into a Fairy Queen! It is a unique gift idea for all ages, all creatures, all occasions, like Births, Birthdays, Anniversaries, Christmas, Weddings, memorials.

Packages Available:

Full Package: personalised CD + 1 A4 print + 2 sample greeting cards + 5 bookmarks: AU$ 180.00 Plus Postage.

Two design package: Two designs on personalised CD and 2 A4 Prints: AU$ 260.00 Plus Postage.

Artwork only: CD + 1 A4 print: AU$ 150.00 Plus Postage.

 

 

Some tips:

- When you take photos of small children or pets, if you get down to their eyelevel, the picture will be in the right perspective.

- If you find it difficult the choose a snapshot, you can send me as many as you like on a CD and I can help you pick.

- If you want more then one person in your Fantasy Portrait they can be in different photos, and she can put them together.

Remember, Argesh Rose is always happy to answer any question once deposit is paid… will pass all your information on to her and she will promptly contact you to sort out the best possible picture for you.

 

 

I see sme of you have already snapped up this offer.  Please, if you are thinking of a getting one for a Christening gift, new baby gift, Christmas gift or birthday present… get in quick.

 

I have just organised my pic I got done onto a canvas… am very excited!

warmly Elizabeth xx

 

3 responses so far

Jul 12 2009

KooL KidZ ~ Hands on kids cooking

Published by Elizabeth under KooL KidZ

 

Ned 3 yrs and Molly 16 months.  Adorable photo. 

 

Zucchini cake + carrot cake = zucchini and carrot muffins

 

 

Thank you Rebecca for sharing your KooL KidZ with us

A day in the kitchen today to keep the troops occupied while its raining outside. I am not complaining!
We attempted to combine 2 cake recipes and then make muffins out of them instead. I *think* it worked (as I eat my 4th for the day).  (By Rebecca)

Zucchini and Carrot Muffins
(makes about 24)

2 eggs
1 1/2 cups caster sugar
2/3 cup olive oil
1 tsp vanilla extract
1 1/2 cup self-raising flour
1 tsp baking powder
2 tsp cinnamon
2 cups grated grated zucchini (lightly packed)
1 cup grated carrot (lightly packed)
2 cups crushed pineapple
1/2 cup almond meal
Icing sugar for dusting

Preheat oven to 180°C.
Combine eggs, sugar, oil and vanilla.
Sift in flour, baking powder and cinnamon.
Fold in zucchini, carrot, pineapple and almond meal.
Grease 2 large muffin trays and spoon in mixture, about 2/3 full.
Bake for around 15 minutes, checking regularly. Muffins are cooked when loely and brown.
Allow to cool slightly, then place on a wire rack to cool completely.
Dust with icing sugar.
These muffins keep well for 4-5 days in an airtight container.

 

………………………………………………………………………………………….

What a great indoor WINTER project to do with the kids.  Kids love “creating” and I have found that having them hands on in making healthy foods really gets them inspired to eat new foods.  Thanks Rebecca for sharing this recipe with us.  Looks like its great fun from your pics….  

if you have a kids recipe, craft project, tips or money saving idea… send them in with a pic and name/age of your child and we will send you a little something when its live on our blog. email to info at latoriana.com.au

 

warmly

elizabeth xx

 Have you seen us on facebook? why not follow us!

La Toriana’s Profile
La Toriana's Facebook profile

At La Toriana we have a passion for kids fashion.

Our labels include, Alimrose, annieB, Lambykins, Fairy Floss Creations, Eternal Creation, Vanchi, TikiBoo Kids, Little Pearls for Little Girls, Tea Princess, Three Little trees, Tummbear, babyjo bamboo baby wear, nest organics, early birds premature baby clothes, teeny weeny premmie baby wear, Oopsidaisi, boxy design, anamalz, Briit design, Bump buddy, cheeky little soles, Sounds for silence, Deshabille, eco peko, fINNIGAN fINN, gertie and me, Hey baby, huggalugs, i candy, lazybones, locolili, miniwhisk, mon tresor, nana huchy, nanny pickle, OOBI baby, penny scallan, Tabitha Emma, Tippie Toes, Princess ratbag, Alannah Rose stationary, Vintage Kid, Wild Things of Noosa and so many more!

We have the best online collection of premmie baby clothing, premature baby gifts and keepsakes too.  We showcase great Australian and New Zealand designers as well as neonatal and NICU appropiate baby clothing as well as organic premmie clothes and accessories.  Checkout our vast range of premmie wear and newborn baby items in our secure online baby boutique.  If you are looking for organic wear for a baby that has been born prematurely, then you have come to the right online store.  La Toriana specialise in providing great quality, stylish and affordable designer label products for low weight babies and babies born early.

No responses yet

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